iPod Shuffle WINNER!!!

I know I'm a little late in announcing to everyone on here, but first thing Monday morning I (that is, Rafflecopter - no bias!) picked, and then notified the winner of the giveaway!

...
But first I'm gonna make you wait ;) (Don't throw stones! haha... But really)

I just wanted to share some information on A-T directly from the main A-T Children's Project page. I know many of you used the option of providing information about A-T as an entry, but I still wanted to get the information out there!

Even if you weren't selected as the lucky winner, I hope you came out of it with some information on A-T, information that maybe helped you understand just why it is I decided to run with the A-T Children's Project next month.

WHAT IS A-T?

A Multi-system Disease...

Ataxia-telangiectasia, or "A-T," is a progressive, degenerative disease that affects a startling variety of body systems. Children with A-T appear normal at birth, and the first signs of the disease usually appear during the second year of life. These first signs are usually a "wobbly" lack of balance and slurred speech caused by "ataxia," which means a lack of muscle control.

Ataxia...

The onset of this ataxia marks the beginning of progressive degeneration of a part of the brain, known as the cerebellum, that gradually leads to a general lack of muscle control, and eventually confines the patient to a wheelchair. Because of the worsening ataxia, children with A-T lose their ability to write, and speech also becomes slowed and slurred. Even reading eventually becomes impossible as eye movements become difficult to control.

Telangiectasia...

Soon after the onset of the ataxia, the A-T patient usually shows another clinical hallmark of A-T: "telangiectasia," or tiny red "spider" veins which appear in the corners of the eyes or on the surface of the ears and cheeks exposed to sunlight. Although these telangiectasia are seemingly harmless, their unique appearance together with ataxia is what led to naming this disease "ataxia-telangiectasia."

Immune System Problems...

For most (about 70 percent) of children with A-T there is another clinical hallmark: immunodeficiency that usually brings recurrent respiratory infections. In many patients, these infections can become life threatening. Because of deficient levels of IgA and IgE immunoglobulins, the natural infection fighting agents in the blood, children with A-T are highly susceptible to lung infections that do not respond to typical antibiotic treatments. For these A-T patients, the combination of a weakened immune system and the progressive ataxia can ultimately lead to pneumonia as a common cause of death.

Predisposition to Cancer...

Children with A-T tend to develop malignancies of the blood system almost 1,000 times more frequently than the general population. Lymphoma and leukemia are particularly common types of cancer, although the frequencies of most cancers are elevated. Ironically, another facet of the disease is an extreme sensitivity to radiation, which means that A-T patients cannot tolerate the therapeutic radiation usually given to cancer patients.

Other Features of A-T...

Other features of ataxia-telangiectasia that may affect some children are: mild diabetes mellitus, premature graying of the hair, difficulty swallowing causing choking and/or drooling and slowed growth. Even though A-T is a multi-system disorder, the children afflicted have and maintain normal or even above-normal intelligence. Their dispositions seem to remain equable and help them to maintain a healthy outlook on life despite the progression of their disabilities.

How Frequent is A-T?

Ataxia-telangiectasia respects no racial, economic, geographic or education barriers. Both males and females are equally affected. Epidemiologists estimate the frequency of A-T as 1 in 40,000 births. But it is believed that many children with A-T, particularly those who die at a young age, are never properly diagnosed. Therefore, this disease may actually be much more common.

Prognosis...

A-T is presently incurable and unrelenting. If they are lucky enough not to develop cancer, most A-T children are dependent on wheelchairs by the age of ten, not because their muscles are too weak, but because they cannot control them. Later, A-T patients usually die from respiratory failure or cancer by their teens or early twenties. A few A-T patients live into their forties, but they are extremely rare.

What treatments are available?

There is no cure for A-T, and there is currently no way to slow the progression of the disease. At this time, treatments are directed only toward partially alleviating some symptoms as they appear. Because A-T is a rare, "orphan" disease, very little research data is available on pharmaceutical therapies that may aid these children. Physical, occupational and speech therapy are used to help maintain flexibility, gamma-globulin injections help supplement the immune systems of A-T patients, and high-dose vitamin regimes are being undertaken with some moderate results.



And now, what you've been waiting for... the winner of the iPod shuffle is...

Congrats to Kevin!

Now, ladies and gents... As I mentioned, I've already notified Kevin. However, as I initially stated in the Original Giveaway Blog Post (yes, that merited capitalization), the winner has 48 hours - AFTER being notified - to contact me to claim their prize, and from then we'll get it all figured out, shipping and all. At this point, Kevin has about 11.75 hours to contact me before I draw another name.

See also: keep your eyes peeled, because you could be the winner if Kevin doesn't step forward.

Or, if you know Kevin, tell him to shoot me an email, a tweet, a blog comment or something! ☺

Thank you so much, each and every one of you, for entering my first giveaway!

Also, just because the giveaway is over doesn't mean it's too late to donate to my ATCP page! It's never too late to give, and no amount is too small!

Again, thank you, everyone! ☺

Mischief Managed

The title of this post just seems oddly appropriate.

Let me just say... I feel a WHOOOOOLE heck of a lot better now than I did when I made that last post.
SO. MUCH. BETTER.
Accomplished. Content (and I don't think that's sugar talking, either - I had the feeling yesterday, too).

Long story short: I got our hotel room for Disneyland taken care of.

I was really starting to worry that nothing would be available because I listened to my husband and waited to book a room... And then I forgot about it, so it's not like I can blame it all on him.
It's within walking distance - about half a mile from the start line. And... Is really pretty. I looked at the pictures of the hotel. Our room has a king and a double. DH joked that we could sleep on one bed and crash on the other after running.

Yeah, I'd already thought about that, and thought that it sounded pretty reasonable.
After the Princess Half, we all went back to the hotel room and just... Crashed. I was out for at least an hour or two.
Runner problems, huh?

At that time, I also took care of theme park tickets. I still have to figure out dining plans, and where the post-race celebratory dinner will be - I'll talk that over with the hubs later. Vegetarian husband = some restrictions on where to go. Although some of the places look rather promising, and I think he'll like them :)

I know time's running out on raising money for the ATCP... But I'm feeling better about that, too. Not so much "I've given up", but more of realizing just how much I actually had control over with that whole deal.

Even with the Disneyland stress, it's been a good couple of days.

I was hoping to hit 100 miles this month - but 50+ is definitely where it's going to be.
I'm contemplating having a couple really strong weeks - there are only a couple weeks left in the month, anyway! We'll see how it goes.
I'm definitely thinking a run later tonight. But not too late - gotta get plenty of sleep. I've been up late reading the last couple days. My guilty pleasures :)
Courtney Milan just released The Heiress Effect. And shortly after, Reeni Austin released More Than a Maid.
I've been looking forward to both books, and I pretty much devoured The Heiress Effect. Loved it. I'm now about, I dunno, 30% through with Reeni's book... I'd say, so far so good. I've had a few issues with it, but nothing really major that wasn't later addressed in the book.

That said, I think I'll get back to reading now. And a run tonight sounds like a really good idea :)

Motivation = Down

I can't tell if I'm having a couple of down days or if this is really what Disneyland and Dumbo are going to turn into...
I bought our plane tickets for Dumbo on Friday. That's about the only thing that's gone right with this whole thing, and even then that's messed up.
We're flying into John Wayne, so not very far away... But we're flying out of San Diego - which is two hours from Disneyland... In good traffic. And no clue how we'll be getting there. We'll probably end up leaving at like 10 just to make sure we get to the airport with plenty of time. Of course, the return flights have a 60% and 50% rate of being on-time. I've never knowingly bought tickets that said anything less than, oh, 80%. Not if I could help it.
At least the plane tickets were fairly cheap in comparison to others I saw - the cheapest, actually.

And the hotels at Disneyland are sold out. Or rather, I found one that was available every day we needed it - EXCEPT the night before the half! ::facepalm::

So I'll be calling tomorrow to see what I can get figured out. The hubs says he'll do it, but the fact of the matter is... I'm our trip planner, usually. Comparing hotels, plane tickets, you name it.
I'm getting sick of being told to not worry about it. I've been hearing that for months, but now it really IS time to worry about it, when even nearby hotels seem to be sold out, AND I'm probably going to end up paying the $600 donation minimum just to run in the races!

It seems likes just when things start working out, they don't.

I tried for a month to get ahold of someone about holding a family walk/run to raise money for the charity... Would you believe I finally got ahold of someone at the beginning of this month? I had the possibilities all planned out, and then when I put my foot down because people got carried away with planning without consulting me, I got "Oh, well, we don't have enough time to do this, forget about it!" Well, we HAD enough time then. Now I've barely got a month before the fundraising deadline, and what's the use of me bringing up any other fundraising ideas when the three I've had have completely fallen through in some way or another?

I'm starting to wonder what the point in all of this really is. The fact of the matter is that this trip was supposed to be fun, but now it's just a pain in the neck.

Oh, and I double-booked us on pasta parties. RunDisney only sends out Disneyland Half Weekend RACE registration confirmations from one section, and the rest from another - at least, they did that for me, but not DH. So I thought we didn't have Pasta in the Park tickets.
Well, we do.
And now we have tickets for the free pasta dinner with the charity.
Same day. Same time.
Do you go to the party you paid an arm and a leg for, or the free party where you get to meet the people you've been raising attempting to raise money for?
Or do you find a way to go to both?

It's just one nightmare after another, and I can't help but ask myself why I'm going, other than what's been paid - and what's going to come out of my bank account when I don't reach the fundraising minimum. Ouch.

My annual appointment sounds more fun than this. Although I never saw the big deal about annuals, once you get past the first one.
But that's beside the point.

Well, it's now 12:01.
45 days until Disneyland.
Woo.
Goodnight.

How to start a Sunday:

1) Wake up at 7:44(ish). Check Facebook. Be amazed at the people awake before you, and the fact that you naturally woke up at this time. Blame work for the fact that you naturally wake up by 8:30.
2) Go back to sleep. You know you want to.
3) Wake up at about 10:14 to your husband rifling around in the kitchen. Realize that it's after 10, and that you just had a dream about running the WDW Marathon... Excited, or nervous about not being well-prepared?
4) Laze about for a bit. Contemplate reading after blogging about your running dream.
5) Take the clothes out of the dryer.
6) Look up races, and daydream about doing them. Include your own little cheering squad in said daydreams, as you look up two marathons.
7) ... Decide to go for a run today. Three weeks ago was exhausting, putting in over 40 miles. Two weeks ago had a little bit in my new Saucony Ride 6 running shoes. Last week had next-to-nothing, and my skin recognized (and complained!) about the difference. Why not start this week off with some miles, and get used to your new shoes? Contemplate before or after work, and decide that both might work if you get your butt in gear. Feel disappointment/discouragement over the lack of a fan in in the apartment complex's workout room.
8) Check the runDisney training schedules for Dumbo and Dopey. Exhale in relief that you're ahead of schedule, and not behind.

Yes, ladies and gents, that is my morning to right now (11:25 AM CDT).
It's so amazing that a year and a half ago, I was contemplating running. Vaguely. I think I started in either late February or early March of 2012 - I don't remember which.
Back then, a 5K sounded reasonable, yet intimidating. A 10K sounded scary as hell. A 7-miler, for one of my dream races, sounded like, well, a dream... And a nightmare all the same. No way I was ready for it! A half marathon was, at best, hilarious. A marathon? Shoot me in the foot.

Now it's July 7. 23 days until I'm 23. I've done 4(?) 5Ks, a half marathon, a virtual half marathon, 4 virtual 10Ks, 2 virtual 1-milers (and still have one to go!).
Oh, and all of those virtual runs were in that exhausting week two weeks ago.

Can anybody say "Learn to balance"? That's what I'm still working on.

In the next 3 months I have... that virtual 1-miler... 5K or 10K for my own virtual run. I have another virtual race on the 25th (I forget what distance, though...). 2.3 miles for a virtual birthday run for me. A virtual 10K for Harry Potter's birthday.

Yes, you read that right. I'll say it again: A 10K for Harry Potter's birthday.
Yes, I know when that is. It's the day after mine (and 10 years before - holy geez, Harry Potter is going to be 33!! LOL)

Anyway... Not too much in August, other than THE START OF THE DUMBO DOUBLE DARE!!!!

Yes, that was important enough that it needed to be in all caps.
Be glad I didn't bold, underline, and italicize it ;)

So I have the 10K on August 31, and the half on September 1. A virtual.... Some-distance-or-other  (Nerd Herd Running's Banned Book run). The Prairie Dog Virtual Half. And I'm waiting to see what else I cram in these next few months, or in October. Hoping to add a couple more half marathons, or a marathon in there somewhere.
...
Must consult with the hubs. One of my biggest cheerleaders, he also brings me back down if I start having race mania - that is, trying to sign up for every race I possibly can.
Sometimes I'm not the practical one. Go figure (insert eye-roll).

Now, as far as that WDW Marathon dream... It was definitely one of those that first made me think I was worried about being unprepared - which I am, but I wasn't expecting to dream about it! Haven't had a running dream in a while.

I dreamed that everybody was ready to go, and I... Was still in my pajamas. At the start line. And all of my stuff was on a school bus... And the school bus had driven away. So there I am, running and looking for the school bus. I find the bus, and have to dig through giant piles to find my bag of clothes. I even found my sleeping bag! After a while I finally find my clothes... Found my running shorts, but couldn't find my sports bra or a shirt.
As I was about to give up, I found my sports bra. Nevermind shoes or a shirt, because I don't remember how those cropped up. So I run back to the start line, and my dad's waiting for me! Weirdness number one (well... Yeah...). Next weirdness, my husband is nowhere in sight! My dad is wielding my DSLR, looking super confused.
...
And the last wave has already started. Nevermind that I should've been in the second-to-last corral. I crossed the start line about 30 seconds after everyone else... And joined the group in getting lost in this little catle-like-thing that depicted the homes of different Disney characters, and you had to find your way out. Included running down stairs (or jumping down small holes, if you preferred that to the stairs).

Then I woke up. Anti-climactic, I know. But the husband was moving around in the kitchen, and it was after 10, so it was definitely time to get up.

Well, looks like it's time for yours truly to get moving. Hope everyone has a great day!